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Thursday, September 11, 2014

Cancer Journal #5: Day-to-day living with Multiple #Myeloma

First things first, I have to get this off of my chest: I am so extremely  uncomfortable right now and I can’t seem to find that spot between reclining and sitting. It’s very annoying. One minute I’m straining my back, the next my stomach and now my neck. What’s the deal here? After a drink and a Godiva treat (that always makes a sister feel better!), I repositioned my area and sat down to a much more comfortable position. Now we can begin.


2014-08-27 10.45.29You just don’t know how much of a task it can be to get comfortable with ailments trying to play havoc within your body. One that presented itself late last week was a fibromyalgia attack. I’ve written about this invisible illness before so if you’ve missed it, please click the link to check it out. You’ll get a better understanding of fibromyalgia and other background on my multiple myeloma history. Back to the attack: I had to do a bit more than I normally do like driving, getting in and out of the car as well as running errands and doing some chores by myself. My sweet daughter Amber normally does these things, but when she walked in the door on Wednesday I immediately knew she needed to go to the emergency room.

And I wasn’t taking no for an answer.

I went into Mom Mode and didn’t think twice about it. You see, Amber was experiencing symptoms of cholestasis. She had it during her pregnancy really bad, which caused her to have to be induced and, unfortunately, she got it from me: I had it during two of my pregnancies. Cholestasis is rare (like most things are with me), and it’s when bile salts from your liver rise to under your skin causing one to scratch an unreachable itch. In pregnancy it can be fatal to baby and possibly mom.

So Amber walks in like a million ants are crawling over her body and stinging her – you know, that slow movement that people do when they think if they barely move they won’t feel whatever it is? Yea, that. She was walking on tip toes and the look on her face sealed the deal for me. The previous day she’d looked up cholestasis, and I later read more about it, and found that outside of pregnancy it’s a symptom of an underlying cause. Her underlying cause?

Gall stones.

Amber has to have her gallbladder removed. So we’re dealing with that. That same day I had to get an emissions test, which I forget about every.single.year. The van DID NOT pass emissions. I’m currently waiting on a part to come in to the mechanic and it better be the solution because $800 later there better not be something else you tell me needs to be done. I’m sure you can imagine that money issue added to my level of stress.

A few errands later and a firing of an old mechanic shop because my mechanic doesn’t work there any longer. Calling and waiting on another mechanic all ended up with me being at the rip-off mechanic. There was something with the kids, but the fibro fog has seriously prevented me from remembering it.

Yup, a hectic week. When one suffers from fibro doctors recommend having days that are consistent in activity. Nothing too or more rigorous than your normal day. When it can’t be prevented your body attacks itself and the nerves sing in protest. Joints begin throbbing, bones begin aching and an overwhelming urge to sleep won’t let up. This could go on for a mere day to three or for weeks and months at a time. The longest I’ve dealt with it was a month.

News about the multiple myeloma and my treatment.

2014-08-15 17.19.07-5I’m in the middle of my third cycle of the stronger chemo regimen and my bone marrow biopsy is schedule for October 3rd. Within a week after that I will receive confirmation of going back to Tennessee for the bone marrow transplant. I’m excited. Of course, I would have preferred to have had this done during the summer for various reason, but October must be better for a reason, right? At least I’ll be done by the end of the year. This incoming New Year I’ll be celebrating my transplant and my new road to recovery. Next year, bringing in 2016, I’ll be celebrating the end of my recovery and the beginning of the rest of my life.

One I hope I do great justice to. After this fight and this journey, the small stuff – money, writing, parenting – shouldn’t be so stressful. One would hope not.



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