Wednesday, August 3, 2011

A little health update

Links within this post go to previous posts to give you further explanation about my health.

It is past time for a little health and weight loss journal post, and since I had doctor’s appointments today and yesterday I thought it would be a good opportunity to give you the latest 411.

Yesterday’s appointment was with the ophthalmologist for my Plaquenel screening. Because of the  medication I take for the sjogren’s I have to get regular screenings of my eyes to ensure that there hasn’t been any damage to my eyes. And, to add to that, I go a little more often than required (for the dosage and time I’ve been on it) because of how my liver functions.

(More about my sjogren’s.)

I’m happy to report, everything looked great with my eyes. I was instructed to use the eye drops four times a day as opposed to the two to three times a day I normally use them.

Today’s appointment went well, but I found out a couple of things that may cause some changes in my current treatment plan. I had my Zometa treatment today and besides the nurse having to chase a vein around my arm (she didn’t catch it!) and stick me twice, everything with that went well.

During the process of my appointment I inquired about some radiology tests that I’d had done. The most important, to me, being the results of my shoulder x-ray. My left shoulder has been hurting me terribly for months now and I’ve had no relief from pain meds and muscle relaxants. The current tests don’t show anything to do with my shoulder, per se, but it could be a result of the straightness of my spine. Where my spine should be curved mine is straight. First order of business to get this “corrected” is physical therapy (where there’s a waiting list!) If that doesn’t help then injections and/or surgery.

What do I think about surgery? Two little letters: N. O.

Now, the not-so-great news is the presence of another lesion somewhere near my collarbone on the right. That would give me about four lesions, I think, and anything over three is considered multiple myeloma. Right now I’m classified at plasmacytomas stage, which – according to my understanding – is based on the number of lesions. The more lesions then it means the condition is progressing and requires more aggressive treatment.

I’m still feeling positive about everything going on. I have enough to think about on that front because I haven’t been sleeping well, which makes me feel worse, i.e., more pain and exhaustion. I’m just dealing with each development one day at a time. I take my meds, eat healthy (mostly!) and try to get some sleep. As a matter of fact, I’m really looking forward to turning in now.

During the first week of September I return to the doctor to discuss the next plan of attack, and I’ll be sure to come back and give you an update.