Saturday, December 4, 2010

Big needles & big bodies

I began writing this post about three days ago and forgot to post it; since then I’ve been pretty sick. This post is about how I felt before that time… since then I’ve felt like a chewed up piece of gum that’s stuck to the bottom of a combat boot that’s being pounded into the sand every few seconds. …

I’ve been negligent in posting my health and weight loss journals – for a couple of reasons. On the one hand, I haven’t really had any new developments and there isn’t really a need to share my day-to-day pains all the time. On the other hand, I just haven’t felt like it.

If you’re new here, let me give you a brief update on my health: I suffer from sjogren’s disease and fibromyalgia. Together these issues cause a myriad of symptoms including  exhaustion, dry mouth and eyes and chronic pain. One of the tings I’ve dealt with is abnormal liver level readings that are monitored on a continuous basis. They’ve been abnormal for so long that I had a liver biopsy earlier this year.

I went to the oncologist yesterday and found out that I’m more anemic than I was the last time I had an office visit and my blood tests are a little suspicious (my word, not hers). My oncologist visits began years ago when I was [allegedly] misdiagnosed with multiple myeloma. Because of that diagnosis and the sjogren’s determination I’m monitored for the development of myeloma by getting bone surveys and scans. And, much to my dismay, bone marrow taken. That will be next week.

It’s been quite awhile since I’ve had bone marrow taken and it is the.most.painful.thing.in.the.entire.world! I’m not exaggerating. I always say it’s more painful than childbirth, but I guess it’s just a different kind of pain. It’s an awful pressure as they push a gigantically long needle into the area between the bones at my joints near my hips (they enter from near the top of the gluteus maximus). And I’ll have a bone survey this Friday – that’s not so bad, it’s just a long process.

That’s really all I’m going to say about that for now. I’m just numb to all of this. Of course, I don’t feel well each day and there are some new worrisome aches and pains, but it seems to be a “normal” part of my everyday life. I’m not going to bellyache about it and I’ll just focus on continuing to be proactive by taking my medications and making it to my doctor’s appointments. It’s really all I can do right now.

On the weight side of things, I hate to admit that I’m 186 pounds. I’ve been on a fairly steady gain since around September. I guess the beginning of the school year contributed, additional stress, a bout of emotional eating as well as a loss of self control are also culprits. I’m a little amazed that I’ve gained a lot of the 60 pounds back that I loss. I know “they” say most people gain the weight back, but I’ve never experienced this before. In the past it has taken me 10 years or so to gain this much weight (20 give or take) and now it takes a few months. Not cute and not cool.

I’ve begun to get my butt in gear a little, but I don’t think I’m making any promises. There is possibly a huge change in the near future that can effect this entire process. So, for now, I’m watching my calorie intake again, trying to move more and managing my health.

Consistency is the key… Uh, if you have some consistency, could you send it my way? LOL

Clicking any of the above links will take you to my other posts on the subject.