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Monday, February 2, 2009

Whatever I can do to help

I believe I "met" Carrie (of Little Miss Hannah) through some one's blog (please forgive me that I don't remember who). Every since I read about Carrie's daughter Hannah, who was recently diagnosed with Gaucher's Disease, I think about them quite often. In fact, I featured her for Meet Your Friends Monday, which is hosted by Toni at It Is Nap Time.

I try to stop by as much as I can to check up on them and to offer what little encouragement I can. So when I clicked over recently and saw that Carrie was asking for help I didn't think twice about contributing a small amount of time to write this post. This is what she wrote on her post about a project she's working on:

"I’m on a mission to find and compile all blogs and up-to-date websites of children with rare diseases (or adults who were diagnosed as children). There are over 6000 rare diseases affecting children in the world, and I can’t do this by myself. I’ve been looking, and I’ve only found less than a dozen blogs (see my special kids links on my sidebar), and I know there are more parents like me out there. Basically, I want to create a directory/blogroll (or whatever you want to call it) that links all these special children together to be unveiled on February 28th, the 2nd annual World Rare Disease Day. You can either leave them in the comments below or send me an email."

If you think you can help or know someone who can then just follow the links above.
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